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Hello Men With Fibromyalgia! Norman here, and I am proud to be sharing this from my good friend Melissa Swanson, She is a Fibromyalgia Blogger & Advocate who has just written her first book for children. I am excited to share this book by Melissa, “Ravyn’s Doll” … How to explain fibromyalgia to your child.
I hope this is a great resource for all of you with children in your lives! So without further ado, here is Melissa to explain Ravyn’s Doll and why she wrote it!
I am asked all the time why did I decide to write this book.
Mostly it is because my journey with fibromyalgia began when our daughter was 9 years old. In the beginning when I was trying to figure things and experiencing severe pain days she would have to help take care of me by getting things that I needed, get up off the couch or chair and do the things around the house that I could not do.
I found myself always apologizing and explaining why I could not do things that I used to do. I work in a school district with elementary and middle school children. The kiddo’s have asked why I sometimes wear dark sunglasses, wear a tens unit, use ice packs/heating pads or move very slow and wince in pain. I find myself explaining not only to the students but to adults that I encounter.
In addition, my fellow Fibromyalgia sufferers have struggled how to explain how they feel to their friends, family and especially their children. I sat down one day and wrote Ravyn’s Doll. I was fortunate to find an amazing publisher & illustrator to bring my story to life.
I am excited to see the change in how invisible illnesses are viewed and how those living with them are treated. In just 3 generations there has been such a significant difference. My generations and previous ones living with chronic pain have faced disbelief from doctors, friends & family that we were really sick. We heard too often that “it is all in your head”. My daughter’s generation hears about fibromyalgia on television, sees posts on social media and because of groups like the National Fibromyalgia and Chronic Pain Association physicians are beginning to admit that fibromyalgia exists and learning how to treat it and it’s “evil sidekicks”. I am happy that Ravyn’s Doll can help teach Kasey’s generation about about invisible illnesses and how to treat those that live with them.
I can’t find the words to how much it means to me every time someone tells me how much their children love the book and how it has made a difference in their life. One of my favorite’s is little Kasey who has taken the lesson in the story one step further. She not only is helping her Nana who has fibromyalgia but according to her Nana “Your beautiful book continues to open her mind to more questions and a genuine sensitivity to others, especially those she knows, especially those in pain.”
ABOUT THE BOOK
Ravyn’s Doll: How do you explain Fibromyalgia to Your Child?
All the kids in class made paper dolls to show someone they love who is hurt or sick. When it’s Ravyn’s turn to share, she shows a paper doll of her mom — and it looks like there is nothing wrong!
Ravyn teaches the class that even though her mom looks healthy, she’s not! Ravyn’s mom suffers from fibromyalgia and its evil sidekicks. Ravyn’s Doll is a simple and effective way to explain fibromyalgia to your child, in a way that is understandable to children. It also shows that not all illnesses are visible and explains how living with an invisible illness affects families’ daily lives. Ravyn’s Doll describes and illustrates why mom or dad can’t do the things they used to do — things that other moms, dads or other family members can do.
ABOUT THE AUTHOR
Melissa Swanson is a chronic pain patient, advocate, and author. Through her Fibro Warriors ~ Living Life Facebook page and blog, she offers positive encouragement, medical information, resources, and support to 18,000+ fibromyalgia and chronic pain patients. In addition, Melissa is a writer for ProHealth.com and the National Fibromyalgia and Chronic Pain Association’s Advocate Voice newsletter. She has also served as editor and writer for Living Well with Fibromyalgia magazine.
ChronicPainDisorders.com and Healthline have both named Melissa’s blog as one of the Best Fibromyalgia Blogs. Healthline says, “This Blog has just about everything you need to read on the pain and exhaustion brought on by the illness. Look for treatments, must-reads, facts, and more. This married, full-time working mom is a true warrior against the debilitation’s of fibro.”
Melissa is a graduate of the Leaders Against Pain Scholarship Training, sponsored by the National Fibromyalgia & Chronic Pain Association, and the International Fibromyalgia Coaching Institute. She is a member of the Leaders Against Pain Action Network. Melissa works with clients as a Certified Fibromyalgia Advisor helping them learn tools to live with the chronic illness fibromyalgia. If you’re looking for a cheerleader to be in your corner with a little bit of “tough love” when needed, Melissa is the one for you. She understands the struggles of trying to balance family life and work while living with the challenges of fibromyalgia and its evil sidekicks.
Connect with Melissa and Fibro Warriors ~ Living Life
Get Fibro Warriors ~ Living Life merchandise: Zazzle.com
Get the book on Amazon Now! Ravyn’s Doll: How To Explain Fibromyalgia To Your Child